Category Archives: Parkinson’s Disease

281. Euston Station made me shiver…

Heading for Euston Station … TFL app … will my train journey home be any easier than the one up?

Coming into town, the combination of an unexpected chill with totally unforeseen leaf fall (in Autumn – who knew?) led to both local lines grinding to a halt. Fortunately ActorLaddie swung into action and ubered me to a tube station. Lunch with InfantPhenomenon made on time.

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280. Running wild…

“Only ten minutes to go,” says Laura.  “You’re doing brilliantly.  If you’re finding it difficult, you can slow down a little.”

You know what, Laura – I really can’t. If I slow down any more, I will be running backwards. If you could really truly see me, you be much more likely to suggest, in the words of the good Doctor, that I get a shift on.

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279. Now we are six…

As a novelist, says Anna Burns, her job is “to show up and be present and attend. It’s a waiting process.” She “just had to wait for my characters to tell me their stories.”
(Interview by Alison Flood in The Guardian, 16 Oct ’18)

This obviously worked for Anna Burns as she has just bagged the Booker Prize with her novel Milkman.

I, however, have spent a lifetime waiting for characters to turn up and write themselves into a book but they haven’t done so yet and I’m rather starting to fear they never will. I go to bed having put out my finest stationery but masterpieces come there none. Not so much as a shopping list; not so much as a tweet. Perhaps the characters have used up all their best ideas writing other people’s books. They have no more twists.

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270. I got my friend an elephant for his new room. He said ‘thanks’. I said ‘don’t mention it.’

I’ve recently been diagnosed with Parkinson’s.  If you were me – which research project or trial would you volunteer for? 

This question is being asked by a woman in – oh, her early thirties? She’s near the front so it’s a bit difficult to see from my chair at the back.  Although, being by a window, I do have an amazing view of the misty city’s domes and spires.  From the ninth floor of the Bentley Institute building, we are looking down on St Paul’s.  We’d spent a little time before the meeting started picking out landmarks and talking with one of the staff.  ActorLaddie asked if they had a roof garden.  No, apparently they had a domed roof.  So not the best shape for a roof garden.  Unless, I suppose, a hanging one.

So that you don’t burst with suspense, I’m going to tell you now that the answer to the woman’s question was, in essence, it depends.

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268: I’m a lumbarback and still OK….

Back bruised … probably more comfortable without the dressing… 

But I waved aside the lumbar puncture FAQs … this is my third, after all … and now I can’t remember how long you need to keep on the dressing.  

It’s probably not very long. I’ve already ripped off the dressings from my arms; bruising up nicely, I see. The back’s just a puncture wound, like my arms, isn’t it? So I probably could take off the dressing now; almost certainly could take off the dressing now.   

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267. Strengthening Our Cores …

Now, I want you to squeeze the balls between your thighs.  Some of you have got small balls but that’s ok – they’ll work just the same…

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264. Good times never seemed so good…

Margaret played first clarinet and collected the subs.  In truth, we barely knew each other; I mimed with the second flutes and we rarely rubbed shoulders with our reeded sisters.

But she sent me an email in June 2012 which meant a lot to me at the time and still sits in my Parkinson’s folder, in case of wobbles.

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262. A Jelly Miscellany…

It’s been how long?  A month?  Surely not…  Oh dear.  Let’s catch up then.

Back from our travels and plunged into getting the living room decorated ready for CarpetMan to do his stuff last Monday.  We’ve been working on this since the spring but with a week to the deadline, still had the fireplace to tile.

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235. Travelling light

This time, we said, we are definitely going to take Considerably Smaller Suitcases.

Over the last couple of weeks, we’ve been planning our second Grand Tour.  Autumn come she will and we’ll be hopping on and off trains with gay abandon, clutching our trusty Interrail Passes and Considerably Smaller Suitcases.

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234. Shake well before use…

What with Manchester and London Bridge and elections, I’ve been tiptoeing around social media of late, in an attempt to avoid the slabs of pure venom which are scattered amid the good stuff.  So, it was only this morning that I hit upon a post sharing the shattering news that one of my heroes – Tom Isaacs, president and co-founder of the Cure Parkinson’s Trust – died last week.  His passing was, apparently, “unexpected and swift”.  He was just forty nine.

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