“I was taking Entacapone … and it powered up hypersexuality. It was replaced with Tolcapone which fixed the job. I was pleased as I was nearly 60 and really could not be bothered.” (Person on PUK Forum)
Way Back When, I was lucky enough to have the chance to talk with BTMan: the first person I’d met with Parkinson’s who was neither mad nor dead nor both. Those of you who have studied my juvenilia might remember him explaining that some Parkinson’s medications cause, as an unfortunate side-effect, a reduction in impulse control. This can lead to excessive spending or gambling; or to over-eating; or to a greatly increased sex-drive, even in term-time.
“It’s one thing joining a gym – it’s another actually going.” She was a wise bird, our old GP: retired now, alas. Of my pregnancy with the InfantPhenomenon, she said: “a summer baby, how lovely! You’ll be able to sit in pub gardens.” Not my first thought but she had four children so knew whereof she spake.
“If you wouldn’t mind filling in these while I prepare the injection – sorry, I know there’s some duplication, but that’s the NHS for you.”
We have the world’s loveliest pharmacist. He’s a great listener, great professional and bedrock for the community. When I walked into his shop for my first lot of Parkinson’s meds and promptly burst into tears, he was kindness personified. Plus he listens to Radio Four and can converse intelligently about The Archers. So I will fill in any amount of forms while he prepares my flu jab.
We are discussing a comprehension paper on ‘Discoveries’, Class Six and I. One of the Gentleman Scientists discussed (and they are all gentleman, alas) was Alexander Graham Bell. I happen to know everything about the telephone, having read a couple of paragraphs on the subject once in a Bill Bryson book. So I share with the class my favourite fact, namely that, until Alexander’s friend Mr Watson invented the telephone bell some years later, the only way to know if someone was telephoning you was to pick up the receiver and check if they were on the other end.
One of the lassies frowns and raises her hand. “Even if it didn’t ring, you’d know someone was calling because the phone would vibrate,” she suggests. There is general agreement, swiftly followed by mild astonishment when I explained that the original phone neither rung nor vibrated. I didn’t break it to them that it didn’t take photos either: humankind cannot bear very much reality.
“We’d been calling all afternoon,” said Douglas’s daughter. “We were about to have one last try when he rang us. Apparently he’d been out with some neighbours. They’d gone, Dad told us, to ‘sing to the old people’.” (Douglas was nearly ninety four.) “I do hope he mimed. Even the old people don’t deserve Dad’s singing.”
We’re jumping into a pile of leaves under the big conker tree at the corner of the playground; me and a handful of dots. The colours glow in the late afternoon sun and, once we’ve finished jumping, me and the dots, we start to choose our favourite leaves. We run our fingers over the veins, the shape, the edges. We compare colours, textures, smell. It’s a rather magical way to spend time on an October afternoon. And I’m being paid for it!
Walking through the school at lunchtime, when I was greeted by a cheery Year Two. She clocked my right hand, frowned a little and said “do you break lots of plates?”
“No,” I replied.
“Ok,” she said.
Nice to feel she could ask…
I’ve had a cover story ready from the start.
If you’ve read my first blog, you’ll remember that I’ve always intended to blame a bite from a radioactive trifle in a freak Ocado delivery. And that I can now become JellyWoman at will, with the amazing super-power of being able to slide under doors.